Release Details
Living with
Duchenne Muscular Dystrophy,
Ukraine

Shareholder Tools
- 2022 recipients include patient advocacy organizations from
"We are proud to support the 2022 grant recipients for their work in the Duchenne community through our STRIVE Awards program. They have shown the broad range of needs in the Duchenne community, including programs supporting adults living with Duchenne," said
The categories for the 2022 STRIVE Awards are 'Innovative' for programs that help to address the unmet needs of the rare disease community, and 'Transition to Adulthood' for programs that support young people with Duchenne as they transition into independent adults. 'Transition to Adulthood' is a category introduced last year to celebrate the initiatives that support those living with Duchenne to lead independent, fulfilling, and rewarding lives. This year, PTC received 40 applications from organizations around the world.
The 2022 STRIVE Awards recipients are:
Innovative Category:
Transition to Adulthood Category:
"It has been such a wonderful experience to be part of the judging panel for the STRIVE Awards. The innovation and determination to meet the needs of the Duchenne community shown by all the organizations who applied made our decision process tough," said
About the STRIVE Awards Program
PTC launched the Strategies to Realize Innovation, Vision, and Empowerment (STRIVE) Awards program in 2015 to support initiatives that benefit the Duchenne community by increasing awareness, diagnosis, and education, and fostering the development of future patient advocates. Each year, an independent panel of external experts with knowledge in rare diseases, patient advocacy and funding initiatives, judge the entries for innovation, vision, and empowerment. Thirty-nine projects supporting the Duchenne community have received STRIVE grants since the program's inception.
For further information about the program and the 2022 award recipients, please visit the STRIVE Awards page on PTC's website at: www.ptcstriveawards.com.
About Duchenne Muscular Dystrophy
Primarily affecting males, Duchenne muscular dystrophy is a rare and fatal genetic disorder that results in progressive muscle weakness from early childhood and leads to premature death in the mid-twenties due to heart and respiratory failure. It is a progressive muscle disorder caused by the lack of functional dystrophin protein. Dystrophin is critical to the structural stability of all muscles, including skeletal, diaphragm, and heart muscles. Patients with Duchenne can lose the ability to walk (loss of ambulation) as early as age ten, followed by loss of the use of their arms. Duchenne patients subsequently experience life-threatening lung complications, requiring the need for ventilation support, and heart complications in their late teens and twenties.
More information regarding Duchenne is available at www.duchenneandyou.com.
About
PTC is a science-driven, global biopharmaceutical company focused on the discovery, development and commercialization of clinically differentiated medicines that provide benefits to patients with rare disorders. PTC's ability to globally commercialize products is the foundation that drives investment in a robust and diversified pipeline of transformative medicines and our mission to provide access to best-in-class treatments for patients who have an unmet medical need. The Company's strategy is to leverage its strong scientific expertise and global commercial infrastructure to maximize value for its patients and other stakeholders. To learn more about PTC, please visit us at www.ptcbio.com and follow us on Facebook, on Twitter at @PTCBio, and on LinkedIn.
For More Information:
Investors:
+1 (908) 300-0691
kokeefe@ptcbio.com
Media:
+1 (908) 912-9406
jclemente@ptcbio.com
Patient Organizations:
+1 (908) 912-9205 or (866) 282-5873
mharmon@ptcbio.com
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