Release Details
PTC Therapeutics Launches Sixth Annual STRIVE Awards Program for Advocacy Organizations in Duchenne Muscular Dystrophy
"The funding we received from the STRIVE Award last year has been fundamental in supporting our mission to acquire life-saving medical equipment, allowing us to deliver medical care and emotional support for those affected by Duchenne in northern
Since its launch in 2015, the STRIVE program has supported almost 30 patient programs dedicated to improving the lives of those affected by Duchenne, even in the most remote locations around the world. Previous winning programs have improved access to diagnosis and treatment, provided emotional support for families, and developed opportunities for personal empowerment and independent living for those with Duchenne. Further details of all winning programs and a video showcasing some of the many extraordinary projects that have been supported by STRIVE over the last five years can be found here.
"After celebrating the five year milestone of the STRIVE Awards in 2019, we continue to be hugely proud of helping patient organizations from around the world provide vital support to the Duchenne community by bringing novel and pioneering projects to life," said
For more information around the criteria for applications, selection process and how to apply, please visit the STRIVE Awards website: www.ptcbio.com/en/strive
About Duchenne Muscular Dystrophy
Primarily affecting males, Duchenne muscular dystrophy (Duchenne) is a rare and fatal genetic disorder that results in progressive muscle weakness from early childhood and leads to premature death in the mid-twenties due to heart and respiratory failure. It is a progressive muscle disorder caused by the lack of functional dystrophin protein. Dystrophin is critical to the structural stability of all muscles, including skeletal, diaphragm, and heart muscles. Patients with Duchenne can lose the ability to walk as early as age ten, followed by loss of the use of their arms. Duchenne patients subsequently experience life-threatening lung complications, requiring the need for ventilation support, and heart complications in their late teens and twenties. More information and resources are available at www.duchenneandyou.com
About
PTC is a science-driven, global biopharmaceutical company focused on the discovery, development and commercialization of clinically-differentiated medicines that provide benefits to patients with rare disorders. PTC's ability to globally commercialize products is the foundation that drives investment in a robust and diversified pipeline of transformative medicines and our mission to provide access to best-in-class treatments for patients who have an unmet medical need. To learn more about PTC, please visit us at www.ptcbio.com and follow us on
For More Information:
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Patient Organizations:
+1 (908) 912-9205 or (866) 282-5873
mharmon@ptcbio.com
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